The Hospital Experience – From the Patient’s Point of View
Monday, August 22nd, 2011
Dan PrinceColleen Sweeney has found that 96% of people suffer from “clinicophobia,” a term she coined to describe patient’s fear of hospitals, providers and the healthcare system. She has data to back that up – from a 1,080-person survey she conducted for Memorial Hospital and Health System in South Bend, Indiana. Colleen is Director of Ambassador and Customer Services at Memorial, and she has made many presentations on patient fears and why the healthcare community needs to know more about them. She was the speaker at a Beryl Institute webinar on the topic August 16.
The interesting thing to people outside of healthcare is that this is news to the people inside healthcare.
But Colleen, who has worked in hospitals her whole career, says you get inured to the sights, sounds and smells of the hospital, and you don’t perceive it the way patients do. As Colleen said, “We see dead people. We see people naked. After a while you stop realizing this isn’t normal.”
Colleen is on a mission to help hospital insiders see the place the way patients do. Her own consciousness was raised when she walked down to admitting with a woman who had come in for surgery. “The woman was shaking uncontrollably,” Colleen said. “I asked her what the trouble was. She said, ‘The last three times I’ve been here to visit people, they died.’” It occurred to Colleen that every patient had some variation of that same fear – “and they weren’t telling us!”
Colleen conducted research to confirm that intuition, including a postcard request to the community to tell the hospital what their fears are. Responses ranged from “I’m afraid I’ll see a dead person” to “I fear white walls – why do you do that to us????” (This, shortly after the hospital had spent $25,000 to paint the walls white.)
She also commissioned the 1,080-patient survey, and the results have enabled her to compile and rank her “Top 11 Patient Fears” list. I won’t share Colleen’s whole list (Be sure to see her next time she speaks on this topic!) but the top 5 are: 1) Infection, 2) Incompetence, 3) Death, 4) Cost and 5) Medical Mix-up.
The list won’t be a big surprise to people who manage and work in hospitals. What Colleen is doing at Memorial is sensitizing hospital staff to the human faces, the emotion, behind these broad, abstract categories. For example, she puts senior staff – the CEO and VPs – at the front door of the hospital for two-hour shifts every day of the week so they can have the same experience she did – walking people down to admitting, finding out what they’re there for and why it scares them.
Colleen says her biggest challenge is hiring people who “care enough to ask the question: What do you fear?” I agree with Colleen that that’s a very big challenge. But the biggest is really taking the nurses, doctors, PCAs and everyone else who’s already on board – and making them “care enough to ask the question.” An idea on how to do that will be the subject for my next post.




